Other Resources
There are many organizations and government programs to help brain injury
survivors and their families. In addition to the New Hampshire resources
listed below, we hope you find something that provides what you need.
New Hampshire resources
The Krempels Brain Injury Foundation is based in New Hampshire and serves
primarily New Hampshire residents. The SteppingStones program also includes
some residents of Southern Maine
and northern Massachusetts.
As an organization we have a specific focus
and
limited
resources. There are lots of other organizations that offer help to
the entire range
of
brain injury survivors in New Hampshire. We offer this list as a shortcut
to the resources we’ve found most helpful. If you don’t live
in New Hampshire, try the national and online resources.
Brain Injury Association of New Hampshire
109 North State St., Suite 2
Concord, NH 03301
(603) 225-8400
http://www.bianh.org
The most comprehensive source of support, sharing, education, and advocacy
for people with acquired brain disorders, their families, and professionals.
Survivors support
groups throughout the State. Individuals
to call for support. NHBIA Family Helpline (800) 773-8400.
Dept. of Health and Human Services
Division of Human Services
Medicaid Client Services
129 Pleasant St.
Concord, NH 03301-6527
(800) 852-3345 x4344
Advocacy and funding for persons who are eligible for Medicaid and who
are in need of long-term care in a skilled nursing facility or a specialized
medical unit.
Division of Developmental Services
State Office Park South
105 Pleasant Street
Concord, NH 03301
(800) 852-3345 ext. 5034
Area agencies located in each of the 12 regions of the state provide case
management, family support, residential and day programs for eligible
persons of its region.
BIANH Resource Directory
Published by the Brain Injury Association of N.H., (800) 773-8400,
contains most of the resources listed here and many more. The Directory
is available online at:
www.bianh.org/directory.htm
Crotched Mountain Foundation
1 Verney Drive, Greenfield, NH 03047
Phone: 603-547-3311 or 800-966-2672
Fax: 603-547-6212
E-mail: info@cmf.org
www.cmf.org
The mission of the Crotched Mountain Foundation is to assist children
and adults with disabilities achieve optimal growth and independence.
Granite State Independent Living Foundation (GSILF)
PO Box 7268
Concord, NH 03302-7268
(603) 228-9680
(800) 826-3700
Services are available to anyone with a severe disability that interferes
with his or her achievement of full independence at home, at work, and
in the community.
New Hampshire Helpline
(800) 852-3388
www.nhhelpline.org
Information, referral, assistance and crisis intervention 24 hours a day.
InfoLink
(888) 499-2525 or (603) 622-8221
Free, non-profit community information and referral service that helps
callers from Rockingham, Strafford and southern York counties with a wide
range of concerns.
Monday - Friday, 8a.m. - 6 p.m.
Division of Vocational Rehabilitation
State Department of Education
78 Regional Drive
Building #2
Concord, NH 03301
(603) 271-3471
Assists eligible New Hampshire citizens with disabilities to secure suitable
employment.
New Hampshire Alliance for Assistive Technology (ATECH Services)
(800) 932-5837; in Laconia (603) 528-3060.
Seeks to make sure that people of any age and any disability have access
to the assistive technology they need in order to participate fully in
life.
Provides information about assistive technology devices and a referral
database of service providers and resource organizations around the state
and the nation, low interest loan program, recycled equipment market-place,
and more.
Northeast Rehab Health Network
70 Butler St.
Salem, NH 03079
(603) 893-2900
www.rehabnet.com
Comprehensive rehabilitation services to patients throughout the region
with physical and cognitive disability.
Institute on Disability -- University of New Hampshire
7 Leavitt Lane, Suite 101
Durham, NH 03824-3522
(603) 862-4320
iod.unh.edu
Provides training, technical assistance, and resources to families, students,
professionals, and community members interested in improving the quality
of life and level of participation in the community for persons with disabilities
and their families.
Governor’s Commission on Disability
57 Regional Drive
Concord, NH 03301
(603) 271-2773 or (800) 852-3405
Information and referral service. Toll free line to assist with information
regarding availability of benefits and services as they relate to disability.
Parent Information Center
(603) 224-7005 or (800) 232-0986
A private, nonprofit agency which provides services to children with disabilities.
Information and referral; parent training; consultations; publications.
Especially helpful to parents negotiating the educational system.
Protection and Advocacy Agency
Disabilities Rights Center
18 Low Avenue
Concord, NH 03301
Phone: (603) 228-0432 x 41 or (800) 834 1721 (v/tty)
Fax: (603) 225-2077
www.drcnh.org
advocacy@drcnh.org
Executive Director: Richard A. Cohen, Esq.
Provides legal services (advice, supervised referrals, and representation)
and other advocacy assistance to persons with disabilities when the problem
is related to or results from the disability.
New Hampshire Developmental Disabilities Council
10 Ferry Street, Unit 315
Concord, NH 03301-5081
(603) 271-3236 or (800) 852-3345 ext 3236
Monitors state services for people with developmental disabilities, recommends
policies, advocates for systems change and legislative change where appropriate.
Provides some grants to fund certain projects.
Parent to Parent of New Hampshire
(800) 698-LINK
A statewide network of families willing to help other parents understand
the challenges of their disabled children and adult children.
National resources
Sometimes national organizations are a good place to start. Most national
organizations will provide information even for those living outside
the U.S.
The National Aphasia Association
29 John St., Suite 1103
New York, NY 10038
www.aphasia.org
(800) 922-4622
A nonprofit organization that promotes public education, research,
rehabilitation and support services to assist people with aphasia, an
impairment of the ability to use or comprehend words, and their families.
The Brain Injury Association Inc.
105 North Alfred Street
Alexandria, VA 22314
(703) 236-6000
Family helpline: (800) 444-6443
www.biausa.org
This national association works on prevention, research, education and
advocacy. The site has links with hundreds of sites related to brain
injury.
The Brain Tumor Society
124 Watertown St., Suite 3-H
Watertown, MA 02472
(800) 770-8287, (617) 9997
www.tbts.org
Provides patients, family members, and other concerned individuals with
support and up-to-date information about brain tumors.
The National Stroke Association
9707 East Easter Lane
Englewood, CO 80112
(800) 787-7876
www.stroke.org
Information, education, and referral.
Links to online
resources
There are thousands of good brain injury sites on the Internet. It is
a worldwide community. Here are some of my current favorites. These sites:
- offer an overview of the issues and problems we all face
living in this strange, new world;
- offer connections to other survivors and families through
support groups, chat lines, and survivors' home pages;
- offer hope.
National Brain Injury Association
www.biausa.org
- a great first stop -- lots of information about almost
every aspect of brain injury -- severe, mild, moderate, treatment,
rehab, prevention, community re-entry, family issues, children, legal
questions.
- links to other resources worldwide; listings also by
state.
- check out the survivors’ pages and chat rooms.
- be patient and spend some time here.
The National Stroke Association
www.stroke.org
- a good site for survivors and families of stroke/aneurysm/AVM
- lots of info, survivors stories, links.
The Brain Tumor Society
www.tbts.org
- up-to-date educational information about brain tumor for patients,
family members, and other concerned individuals.
- links to other resources online, support groups, chat lines.
Waiting.com
www.waiting.com
- known as the “Waiting Room” -- originally created to inform,
support, comfort families of survivors still in coma.
- absolutely loaded with good stuff.
- check out The Bridge From Despair -- stories and poems by survivors
and family members.
- distinguishes itself from most other sites by addressing the issue
of grieving in a sensitive, respectful, realistic way. Grief is part
of the deal, for the survivor and family. But its usually ignored.
- positively one of the best sites out there!!
The Electric Edge
www.ragged-edge-mag.com
- Online version of The Ragged Edge, a magazine dedicated to
disabled ability.
Brain Injury Center
www.braincenter.org
- one of the best state association sites. Very slick, very cool, designed
by the Brain Injury Association of Kentucky
Head Injury Society of New Zealand
www.head-injury.org.nz
- dedicated to providing useful information for people who are newly
introduced to brain injury.
- encourages people in recovery to talk to each other by e-mail, and
to advocate for their own needs.
- great stories and poems.
- comprehensive, well-developed site.
Web Ring
www.jodihouse.org/links.htm
|
